In previous columns, I’ve discussed some of the long-term side effects I experience now. Not every side effect that I currently have is due directly to the chemo drugs. Experiences and tragedies create a whole set of side effects on their own. One of those side effects is post-traumatic stress disorder, or PTSD. In my column sharing the long-term side effects I now experience, I briefly mentioned that my experience with lymphoma has left me with PTSD.
I was introduced to PTSD when I was 17 years old, after having been in a terrible car accident all by myself. A lot of therapy, and even hypnosis, was needed to help me get through the long-term effects the accident had on me. I’m still not totally over it.
Cancer had the same type of effect on me, except this time it’s not as easy to shake. According to the Mayo Clinic, “PTSD symptoms are generally grouped into four types: intrusive memories, avoidance, negative changes in thinking and mood, and changes in physical and emotional reactions. Symptoms can vary over time or vary from person to person”. Here are some of my PTSD triggers:
I meet PTSD when I visit my mom’s house and see the room that I recovered in from chemo.
I meet PTSD when I use hand sanitizer.
I meet PTSD when areas of my body begin to randomly itch.
I meet PTSD when I feel nauseous.
I meet PTSD whenever I have my blood drawn.
I meet PTSD whenever I smell rubbing alcohol.
I meet PTSD when I smell the shampoo I used during treatment.
I meet PTSD when I see Dasani water bottles.
I meet PTSD when I throw up.
I meet PTSD when I get a rash.
I meet PTSD when my back hurts.
I meet PTSD when I have chest pains.
I meet PTSD when it is hard to breathe.
I meet PTSD every time I swallow a pill.
I meet PTSD whenever I walk into the infusion center.
I meet PTSD when I walk outside the airport in Florida.
I meet PTSD when it hurts to swallow.
I meet PTSD when I see any red liquid.
I meet PTSD when I eat or smell foods that were around me during treatment.
I meet PTSD every day.
I know time and mindfulness will heal this wound. For some, therapy and medication will too. Whatever the vice, I know that I will get through this. I’m just not sure if I’ll ever get to go a day when the word “cancer” doesn’t come up in my brain. And that’s OK — I’m making the most of each moment that cancer comes through my consciousness and doing my best to make the most of these memories.
That’s what is important: These are just memories. They are memories triggered because of traumatic experiences that I’ve had. I challenge myself to take these memories and create new happy associations with them in order to guide myself through these chest-tightening moments.
Please leave comments below and share what moments trigger your post-cancer PTSD?
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